The PHACE Syndrome Community is a United States 501c3 non-profit dedicated to serving those affected with PHACE and their surrounding family, friends, and community.  Its leadership, officers, and members are all volunteers and take no compensation.  The organization prospers through the generosity of the community.  We encourage all to participate and make whatever time or resource contribution that is possible, so you can make a difference for people living with PHACE Syndrome.

 The mission of the PHACE Syndrome Community is:

• Raise awareness,
• Support each other
• Fund research
• Find a cause and improve treatments