Mission and History

The National Down Syndrome Congress (NDSC) is a not-for-profit organization dedicated to an improved world for individuals with Down syndrome. Founded in 1973, we are the leading national resource of support and information for anyone touched by or seeking to learn about Down syndrome, from the moment of prenatal diagnosis through adulthood.

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

We have worked tirelessly over the years to foster a network of local and regional groups across the country to reach out and embrace thousands of people with Down syndrome, their families, friends, and the professionals who support them.

We are the people who believe in our kids, demand their rights, and get them affirmed. We are the community that supports them in all they do from infancy to adulthood. We are also people with Down syndrome, working together for a better future.

Our Mission and Vision Statements

The mission of the National Down Syndrome Congress is to provide information, advocacy, and support concerning all aspects of life for individuals with Down syndrome.

The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.

NDSC Diversity, Equity, and Inclusion Statement

National Down Syndrome Congress is committed to fostering, cultivating, and preserving a culture of diversity, equity, and inclusion where everyone is respected and valued.  We embrace and encourage differences in age, race, ethnicity, national origin, family or marital status, gender identity or expression, sexual orientation, language, physical and cognitive ability, education level, political affiliation, religion, socio-economic status, and veteran status among our members, board members, volunteers, and staff.

As an organization that supports the inclusion of everyone, we are committed to modeling diversity, equity, inclusion, and fair and equal treatment for all. We are committed to being nondiscriminatory, providing equal volunteer, leadership, and employment opportunities. We respect the value that diverse life experiences bring to our organization and welcome open communication to ensure that all views are represented, understanding that each has value.